SSDI does not pay for your medications directly, but it gives you the income to buy them yourself
Social Security Disability Insurance (SSDI) is a monthly cash payment. You receive a check (or direct deposit) based on your work history, not on what you spend. The amount does not change if your prescriptions cost $50 a month or $500 a month. What SSDI does do is replace lost wages so you have money to cover medications along with rent, food, and everything else.
If you are receiving SSDI, you also become may be able to access for Medicare after you have been on the program for 24 months. Medicare Part D covers prescription drugs, and that is where your medication costs actually get reduced. Until you reach that 24-month mark, you will need to find other ways to pay for prescriptions—through Medicaid, a state program, a pharmaceutical company's patient information program, or out of pocket.
The relationship between SSDI and medication coverage is indirect but important: SSDI gives you the income, and Medicare (once you may have access to) helps you afford the drugs themselves.
Key Takeaways
- SSDI is a monthly income payment that does not vary based on your medical expenses or prescriptions.
- You become may be able to access for Medicare Part D (prescription drug coverage) after 24 months on SSDI, which is when medication costs are actually covered.
- Before you reach 24 months, you may be able to use Medicaid, state pharmaceutical programs, or manufacturer information to reduce prescription costs.
- Some medications require prior authorization from Medicare or your state program before they will pay, so check with your plan before filling a new prescription.
How Medicare Part D works once you have been on SSDI for 24 months
After 24 months of receiving SSDI, you are automatically enrolled in Medicare Part A (hospital coverage) and Part B (doctor visits). You then have the option to join a Part D plan, which covers prescription medications. Part D is run by private insurance companies under contract with Medicare, so the drugs covered and the cost you pay depend on which plan you choose.
Each Part D plan has a formulary—a list of drugs it covers. Your medication may be on the formulary, or it may not be. If it is not covered, you can ask your doctor to request an exception, or you can switch to a different Part D plan during the annual enrollment period (October 15 to December 7 each year). You pay a monthly premium for Part D, and then you also pay a copay or coinsurance each time you fill a prescription.
The cost structure changes throughout the year. You pay a certain amount until you reach a deductible, then you pay coinsurance, then you enter a coverage gap (sometimes called the "donut hole") where you pay more, and finally you reach catastrophic coverage where Medicare pays most of the cost. This sounds complicated because it is, but your Part D plan will send you a summary each year showing what you will pay for your specific medications.
What to do before you reach 24 months on SSDI
The waiting period between when you start SSDI and when Medicare begins is the hardest time for medication costs. You have income from SSDI but no drug coverage yet. During this time, several options can reduce what you pay out of pocket.
Medicaid is a state-run program that covers low-income people, and SSDI recipients almost always may have access to. Medicaid covers prescriptions, doctor visits, and hospital care with little or no cost to you. Each state runs its own Medicaid program, so what is covered varies, but prescription coverage is standard. You explore through your state's Medicaid office or online portal, and approval usually takes two to four weeks.
If Medicaid is not available in your state or you are waiting for approval, ask your doctor or pharmacist about pharmaceutical patient information programs. Drug manufacturers run these programs and provide free or low-cost medications to people who cannot pay. You fill out a form (usually online), provide proof of income, and the manufacturer ships the medication to you or your pharmacy. The process takes one to three weeks, and you may need to reapply every few months or once a year.
Some states also run their own prescription information programs. Your state health department or your local Area Agency on Aging can tell you whether one exists in your state and how the process works.
How SSDI income affects what you pay for medications
SSDI is counted as income when you explore for Medicaid or other information programs. This means that receiving SSDI can actually make you ineligible for some programs that have strict income limits. However, most states have raised their Medicaid income limits specifically for SSDI recipients, so you will usually still may have access to.
When you explore for a pharmaceutical patient information program, you will be asked to report your household income. SSDI counts as income. If your SSDI payment is above the program's income limit, you may not be approved. Some manufacturers have higher income limits than others, so if you are denied by one program, you can try another.
The key is to be honest about your income when you explore. Programs verify income through Social Security records, and lying will disqualify you and may have legal consequences.
What happens if a medication is not covered by your plan
Once you are on Medicare Part D, you may find that a medication your doctor prescribed is not on your plan's formulary. You have several options. The first is to ask your doctor whether a different medication on the formulary would work for your condition. Many conditions can be treated with multiple drugs, and switching may be possible.
If switching is not an option, you can request a formulary exception. Your doctor submits a form to your Part D plan explaining why you need that specific medication. The plan reviews the request and usually responds within 72 hours. If approved, the plan will cover the drug even though it is not on the formulary. If denied, you can appeal.
You can also change Part D plans during the annual enrollment period. If your current plan does not cover a medication you need, you can switch to a plan that does. The trade-off is that the new plan may have higher copays for other drugs you take, so compare the total cost before you switch.
Frequently Asked Questions
Do I have to take Medicare Part D when I become may be able to access?
No, but there is a penalty if you delay. If you do not join a Part D plan when you first become may be able to access, and you later decide to join, you will pay a higher monthly premium for as long as you are on Medicare. The penalty is about 1% of the national average Part D premium for each month you were not enrolled. If you do not need prescription coverage, you can decline it, but most people find it worth joining to avoid the penalty.
Can I use my SSDI money to pay for medications that Medicare does not cover?
Yes. Your SSDI payment is yours to spend as you choose. If Medicare Part D does not cover a medication, you can use your SSDI income to pay for it out of pocket, or you can look for a patient information program through the drug manufacturer. Some medications are very expensive, so this is a real decision many people face.
What if I cannot afford the copay for a medication I need?
Tell your doctor or pharmacist. Many manufacturers offer copay information cards that reduce what you pay at the pharmacy. Your state may also have a program that helps SSDI recipients pay for medications. Your local Area Agency on Aging or your state health department can tell you what is available where you live.
Does SSDI cover therapy or counseling?
SSDI itself does not, but Medicare Part B (which you get automatically after 24 months) covers mental health visits with a psychiatrist or psychologist. Medicaid also covers therapy. The amount you pay depends on your plan, but both programs cover these services for SSDI recipients.
Can I get SSDI if my only condition is that I cannot afford medication?
No. SSDI is based on whether a medical condition prevents you from working, not on whether you can pay for treatment. However, if you have a condition that is severe enough to prevent work, and you cannot afford medication to treat it, that untreated condition is what SSDI evaluates—not the cost of the medication itself.